The Hidden Gift Wrapped in a Fatal Disease
It wasn’t long after MaryEllen and Kevin were born that we got the devastating news. Their condition, although unknown, was probably going to be life limiting. Their lack […]
Kevin
The Burning Questions, Answered!
Did you always want to know more about MaryEllen and Kevin but were afraid to ask? Do these questions keep you up at night? Well, rest easy, I am here […]
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We’re Rocking Our Yellow For Microcephaly Awareness Day!
The report said cerebral atrophy. I knew all along something was not right. Kevin was nine months old when he had that CAT Scan. From the time he was […]
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Three Cheers For Strong Moms Everywhere
“I can do things you cannot, you can do things I cannot; together we can do great things.” – Mother Teresa I’ve heard it a million times in 28 years. […]
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Toys, Blind Kids and Kathie Lee
“Did I hear that correctly?” I thought. I turned the television volume up and paid attention. “So, these toys would be appropriate for blind children?” I did hear correctly. Astonished, […]
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When The Lights Go Out
The Weather Channel buzzed about it for days. Impending severe weather may produce situations where power may be lost. It doesn’t matter where you live; it happens to […]
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Does Your Baby Have Warburg Micro Syndrome?
Wondering whether your baby has Micro Syndrome? Statistically speaking, they probably do not. Warburg Micro Syndrome is very, very rare. There are less than 200 known cases since the first […]
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I Noticed
Dear Kevin, 11,066 days. That’s how long you’ve been a dad. Daily, you go above and beyond and show our children, by just being you, how to do the right […]
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How Did We End Up Here?
The words hit me like a well placed punch in the stomach. I had to catch my breath before I could go on. “We will also discuss various end of […]
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Bad Santa, Good Santa
We spend MaryEllen’s December birthdays at the local mall, shopping, her most favorite thing to do. She loves the feeling of all the new outfits draped over her and […]
