The Burning Questions, Answered!
Did you always want to know more about MaryEllen and Kevin but were afraid to ask? Do these questions keep you up at night? Well, rest easy, I am here […]
The Bermuda Realization
I was always determined to not let MaryEllen’s and Kevin’s limitations hold us back from enjoying family vacations. Leaving the comfort and accessibility of our home was not always easy. […]
Share this:
We’re Rocking Our Yellow For Microcephaly Awareness Day!
The report said cerebral atrophy. I knew all along something was not right. Kevin was nine months old when he had that CAT Scan. From the time he was […]
Share this:
Three Cheers For Strong Moms Everywhere
“I can do things you cannot, you can do things I cannot; together we can do great things.” – Mother Teresa I’ve heard it a million times in 28 years. […]
Share this:
Not Just a Nurse, Joy Behar
Joy Behar and Michelle Collins, cohosts of The View recently caused a stir with their ignorant comments about Kelly Johnson, a registered nurse and the Miss Colorado contestant in The […]
Share this:
Toys, Blind Kids and Kathie Lee
“Did I hear that correctly?” I thought. I turned the television volume up and paid attention. “So, these toys would be appropriate for blind children?” I did hear correctly. Astonished, […]
Share this:
Treading the Rare Disease Waters
Imagine yourself treading ocean water. Between the waves, you see a glimpse of land. Water rises above your ears and face and rhythmically lowers to your chest. There is no […]
Share this:
When The Lights Go Out
The Weather Channel buzzed about it for days. Impending severe weather may produce situations where power may be lost. It doesn’t matter where you live; it happens to […]
Share this:
Welcome to the World, Little One
“Mr. and Mrs. Burke, I am so sorry. Your baby has hydrocephalus.” My heart sank. I knew it wasn’t good. Just a few years prior, I babysat a little boy […]
Share this:
The Day My Mom Guilt Disappeared
“Do siblings of children with special needs turn out okay?” I’ve asked myself that question many times in the last 28 years. Certainly, in our family, there is enough love […]
