The Hidden Gift Wrapped in a Fatal Disease
It wasn’t long after MaryEllen and Kevin were born that we got the devastating news. Their condition, although unknown, was probably going to be life limiting. Their lack […]
Family
The Burning Questions, Answered!
Did you always want to know more about MaryEllen and Kevin but were afraid to ask? Do these questions keep you up at night? Well, rest easy, I am here […]
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The Bermuda Realization
I was always determined to not let MaryEllen’s and Kevin’s limitations hold us back from enjoying family vacations. Leaving the comfort and accessibility of our home was not always easy. […]
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We’re Rocking Our Yellow For Microcephaly Awareness Day!
The report said cerebral atrophy. I knew all along something was not right. Kevin was nine months old when he had that CAT Scan. From the time he was […]
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Toys, Blind Kids and Kathie Lee
“Did I hear that correctly?” I thought. I turned the television volume up and paid attention. “So, these toys would be appropriate for blind children?” I did hear correctly. Astonished, […]
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When The Lights Go Out
The Weather Channel buzzed about it for days. Impending severe weather may produce situations where power may be lost. It doesn’t matter where you live; it happens to […]
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Welcome to the World, Little One
“Mr. and Mrs. Burke, I am so sorry. Your baby has hydrocephalus.” My heart sank. I knew it wasn’t good. Just a few years prior, I babysat a little boy […]
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The Day My Mom Guilt Disappeared
“Do siblings of children with special needs turn out okay?” I’ve asked myself that question many times in the last 28 years. Certainly, in our family, there is enough love […]
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It’s Warburg Micro Syndrome, Now What?
You’ve read the letter over and over. Somehow, the words don’t sink in; they just sit there in the air dangling in front of you. Where do you go from […]
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Dear New Mom of a Child with Special Needs
Dear new mom, Hi! Nice to meet you. Welcome to the club! I’ve been in this club for almost 30 years, so any thoughts or feelings you may have, I […]
