It’s Warburg Micro Syndrome, Now What?
You’ve read the letter over and over. Somehow, the words don’t sink in; they just sit there in the air dangling in front of you. Where do you go from […]
You’ve read the letter over and over. Somehow, the words don’t sink in; they just sit there in the air dangling in front of you. Where do you go from […]
Wondering whether your baby has Micro Syndrome? Statistically speaking, they probably do not. Warburg Micro Syndrome is very, very rare. There are less than 200 known cases since the first […]
Dear new mom, Hi! Nice to meet you. Welcome to the club! I’ve been in this club for almost 30 years, so any thoughts or feelings you may have, I […]
“She’s going to discover the cure!” or “He’ll be a doctor because of MaryEllen and Kevin.” I always imagined that our healthy kids would have such a connection to their […]
Dear Kevin, 11,066 days. That’s how long you’ve been a dad. Daily, you go above and beyond and show our children, by just being you, how to do the right […]
The words hit me like a well placed punch in the stomach. I had to catch my breath before I could go on. “We will also discuss various end of […]
Since MaryEllen and Kevin were young, they have required a great deal of care to help maintain their good health. For us, good health means not being hospitalized. Even though […]
Let’s face it. Special needs parenting is not for wimps. On any given day, we can be puked on, spit on, and yelled at by our loving and adorable children. […]
We spend MaryEllen’s December birthdays at the local mall, shopping, her most favorite thing to do. She loves the feeling of all the new outfits draped over her and […]
Going out in public with MaryEllen and Kevin should be an olympic sport! I know I would get the gold medal. Just like a true dedicated sports professional, after years […]