The first thing I do every day is give thanks. Thank you, God, for giving me this life.
I am Lori. I am married to Kevin, the man that steadies the ship of our family. We have four kids, our crew mates, who rock that boat daily. Two of our children have a very rare disease that affects less than 200 people worldwide. They are the oldest known patients in the world with Warburg Micro syndrome.
There’s no complaining and no pity party here. I share smiles and love and hope and a heartful of us.