An Open Letter To Dr. David Samadi of Fox News
Dear Dr. Samadi, I was watching your show, Sunday Housecall, on Fox News today. The subject turned to the Zika virus. As you discussed the virus and how it can affect unborn children, […]
The Warburg Micro Syndrome Series 2016 – Muscles and Joints
Children with Warburg Micro Syndrome commonly have hypotonia, progressive joint contractures, and spastic diplegia with increasing spasticity that may eventually lead to spastic quadriplegia in later years. (Graham et al., 2004, Morris-Rosendahl […]
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Microcephaly Is Not a Four-Letter Word
In recent days, news about the Zika virus has flooded the airwaves. If you haven’t heard of it, it is a mosquito-borne illness that can cause brain malformations in a baby […]
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The Warburg Micro Syndrome Series 2016 – Cognitive
According to the literature, most children born with Warburg Micro Syndrome have a severe to profound intellectual disability. This means that according to standardized testing, our children perform much lower […]
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The Warburg Micro Syndrome Series 2016 – Eyes
Warburg Micro Syndrome children have eye abnormalities that may include microphthalmia, microcornea, microphakia, cataract, pinpoint atonic pupils, ptosis, nystagmus, mild optic atrophy, blepharophimosis, and severe cortical vision impairment. [Ainsworth et […]
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The Warburg Micro Syndrome Series – The Brain
The Brain Warburg Micro Syndrome is a neurodevelopmental disorder. Children with this condition typically have microcephaly and brain malformations including bilateral frontal polymicrogyria, thin corpus callosum and small cerebellum. […]
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A Complicated Life, Contemplated…
As he said goodbye, it hit me. A son returning to college. It’s a common occurrence. But when James, my younger son, leaned over and said “See you in […]
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Thank You, Sachem North High School!
“Here comes Santa Claus, here comes Santa Claus right down Santa Claus Lane,” I sang loudly. Santa and the elves would arrive any minute. MaryEllen and Kevin were nestled in […]
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The Best And Biggest Birthday Ever!
When MaryEllen and Kevin were babies, we were always told that their lives would be short – less than two years – so since then, birthdays in our house […]
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The Hidden Gift Wrapped in a Fatal Disease
It wasn’t long after MaryEllen and Kevin were born that we got the devastating news. Their condition, although unknown, was probably going to be life limiting. Their lack […]
